Tuesday, October 16, 2007

Seizure update

At the end of May, I slowly weaned little E from his seizure medication, Topamax.
He hadn't had any seizures since February and there were definitely times where he didn't get meds because he fell asleep early, we forgot, were traveling, etc.
He did great all summer. No seizures and no medication from June until the end of September.
Then a few weeks ago he started dropping all over the place. Little E has "atonic" seizures, which means he just drops without any notice. It is very short-lived, only 15-30 seconds that he is out. Obviously, the scary part is what will he bang his head on on the way down? This
website explains it well.
One day he had 9 drops in one afternoon. The next day 6. I started him on his meds straight away and by the end of the week they were fewer. He hasn't had any seizures in the past week that we're aware of.

This website shows crazy helmets for adults and children. This makes me want to cry to see these ridiculous things. It actually says, "The helmet that kids and children LOVE to wear!" For heaven's sake, it looks like a cloth diaper on their heads.

Pray for my sweet boy.

1 Comments:

Blogger leaner said...

I laughed SOOO hard at those helmets. Man, like ANY kid would want to wear those.

I am sorry he is having seizures again.

7:18 PM

 

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